
When they doubled my blood pressure medication I knew I was in trouble.
I’ve known I had kidney problems since I was 12 years old. But no one knew what was wrong. I was finally diagnosed with a chronic kidney disease called IgA nephropathy about five years ago. There are five stages of kidney disease and I’m at 3. At stage four and five people prepare for dialysis and possibly a kidney transplant. At stage 3 I have high blood pressure, edema, which is swelling, especially in my legs, anemia and fatigue.
There’s a lot I can’t control, like even if I had a kidney transplant, the disease would come back. That’s the nature of IgA nephropathy. But I can control what I eat. Except I don’t.
Eating for renal disease is really essential to slowing the progression of the disease. I’m supposed to be eating a low protein, low sodium diet. As the disease progresses I’ll have to watch out for things like phosphorus, found in milk and bananas.
I rarely drink water, I don’t cook, I love chocolate and sweets, I eat at Dairy Queen and McDonalds on a regular basis and I’ve gained back all the weight I lost after my daughter was born. (While I plan to share a lot of myself here you couldn’t pay me enough to reveal my weight. Anyway, what matters most to me is reducing the number on my blood pressure chart rather than the one on the scale.)
I kept a three-day food log before visiting a nutritionist at Fairview Southdale Hospital. The results were illuminating. It appears my three favorite food groups are cereal, coffee and chocolate. Cereal isn’t bad, coffee increases your blood pressure and chocolate contains phosphorus and sugar.
I’m starting small. With help from the nutritionist we decided I would try eating a small bowl of fruit when I first woke up, eat some cereal at work and then pair a healthy frozen meal with yogurt and berries or other fruit at lunch.
I’m also going to attempt to cook one day a week. I’m aiming for a chicken breast with prepackaged salad. It probably sounds pathetic but even that sounds like a lot of work to me.
Periodically I’ll post my food log so that I can be held accountable and maybe you could give me some encouragement or suggestions.
I can’t say I’m not going to sneak out for a chocolate shake at DQ. But if I can stick to these small changes I can build on them.
Small, realistic changes.
That’s what I’m aiming for.
And hopefully I’ll make enough changes to make a positive impact on my health.
Need help...
Back to page topyour story is really very very helpful. but i want your help in what to eat. can you please give your full diet plan???
I am approximiately 18 years old. I was diagnosed with Iga Nephropathy when I was 16, after renal biopsy. After that I have suffered three relapses. I need your help. Please help me. I think you have much more experience than me and I would be very thankful to you if you let have benefits from your experience.Thanks.
I'm new to Savvy, and very...
Back to page topI'm new to Savvy, and very touched by your story and openness. If there is anything that can be done to support you...I'm in!!
You're My Hero...
Back to page topI applaud you for your courage and candor, Melissa. I never knew the extent of your health issues and am so struck by your strength in revealing it. Nevermind keeping your weight secret, what you've shared above is so much more personal than a number.
I'm certainly not one to give health advice, but in trying to take care of myself I've gained a little knowledge:
1. You can really substitute potato chips with carrots. It sounds crazy but it works on my cravings (or maybe I'm just part rabbit), especially when paired with a sandwich.
2. Make cooking fun. I recently started cooking again now that I live with my parents, and if I make grocery shopping and cooking things to look forward to, I'm more likely to do them. For me, this means allowing myself to grocery shop whenever I get the urge (see my last trip to Cub at 12:30 a.m.) and looking at my grocery shopping trips as time to be alone. Some people do yoga, I go grocery shopping to feel at peace. To each her own, yes? Then the cooking becomes a natural extension of the shopping, and by trying new recipes and searching online for healthy dishes, I feel a sense of accomplishment.
3. Water. I only drink water at work. I started by exchanging one cup of coffee for a glass of water every day. Now I'm one of those people who can't function without her morning glass of water. It sounds crazy, but you can trick your body and mind into craving it.
I wish you best of luck and, as always, look forward to reading more from you.
You Can Do It!!...
Back to page topI knew that you had problems with your kidneys since you were young but I did not know all that you shared. I was shocked and sad! But in a way I could relate to you when it comes to TyShaun and his diet. He has Type 1 Diabetes so we have to deal with all the card counting and insulin shots. I know you can do it! You are a very strong nd determined person and you will suceed. I am not saying it will be easy but with all the love and support you have you do not have to do it alone! I love you, We Love you and if you need anything at all don't hesitate to ask. It is very helpful just to talk about everything the good and the bad with others. I know opening up about TyShaun to others has helped me a lot!
Love you always
Shannon
thanks for sharing your story...
Back to page topThanks for sharing this, Melissa. Can I ask how they finally diagnosed it? I've had high blood pressure since I was in my mid-20s (when I was in much better shape!) and have been on a medication for it ever since. My new, wonderful doctor (yes, they do still exist) was shocked when I first went to her a year and a half ago and learned I'd never had a kidney ultrasound. She said something about having high blood pressure at a young age and how it can be linked to kidney problems. I had a kidney ultrasound and the results were normal. But I'm curious what kinds of symptoms you've had and how they finally diagnosed what you have.
-Lori C
Kidney biopsy answered the question ...
Back to page topI had a kidney biopsy when I was 12 because of the blood and protein in my urine. They couldn't tell back then. But the blood and protein persisted and I had another kidney biopsy about five years ago and they diagnosed it.
need assistance in diet...
Back to page topyour story is really very very helpful. but i want your help in what to eat. can you please give your full diet plan???
Good luck ......
Back to page topand keep blogging about it. Your Savvy friends are supporting you!
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